The Dominantly Inherited Alzheimer Network (DIAN) is involved in international collaborative research efforts to advance the understanding and treatment of Dominantly Inherited Alzheimer’s Disease (DIAD).
If your family is affected by this disease, please consider participating. You will add to the global knowledge of how DIAD is diagnosed and treated and help researchers pursue ways to prevent or minimize its medical and social impact.
Ways to participate
EXR Expanded Registry
An international collection of individuals and families affected by DIAD and researchers studying the disease. Participation is crucial to developing better methods of diagnosis, treatment and prevention.
Observational Study
This long-running study allows researchers to monitor and identify changes in individuals who carry one of the gene mutations known to cause inherited forms of Alzheimer’s.
Clinical Trials
Participation in our clinical trails (DIAN-TU) is invaluable to researchers worldwide, If you have or are at risk for dominantly inherited Alzheimer’s disease, please consider participating.
What is the DIAN-TU doing to improve outcomes?
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Other benefits & opportunities
What is DIAD?
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Exploratory Genetic Counseling & Testing (GCT Program)
An opportunity to participate in a research study to see if the Alzheimer’s disease in your family is caused by a genetic mutation that causes DIAD.
Family Conferences
International conferences that enable families and researchers to meet, share experiences and discuss the latest research efforts.
Video Archives
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DIAN EXR Newsletters
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Webinar Access
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Family Voices
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DIAN EXR Newsletters
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Other Opportunities (MOVE THIS TO RESOURCES?)
If your family does not have Alzheimer’s disease caused by a mutation, you may still be eligible to participate in other Alzheimer’s studies.
Confidentiality Notice: All research data obtained from DIAN participants is kept strictly confidential. DIAN participants themselves are not told about their research results nor are the results provided to their primary physicians. This is necessary to carefully safeguard the data to minimize unintended consequences of disclosure for employment, insurability, and other considerations.