Browse by language: Dutch | English | French | German | Italian | Japanese | Portuguese | Spanish
Individuals and families that are impacted by inherited Alzheimer’s disease often share their experiences in conferences or with the media and public. These families have graciously agreed to also showcase their stories here for other DIAD families and health professionals.
2016 Family Member Presentations
Family Conference 2016
6 Siblings Living In The Shadow Of Alzheimer’s
TODAY, March 30 2017
A family looks for answers into why so many of them develop Alzheimer’s disease
Audio: NPR, Morning Edition, August 25 2022
Alzheimer’s: New clues in search for cure
CBS News, October 2011
DIAN Video: Genetic Counseling & Testing
Interview with a family member
DIAN Video: What does it mean to have DIAD in your family?
Brian’s Story; 2016
DIAN-TU trial participant and his wife talk about how to stay motivated
Webinar in St. Louis, MO 2017
Dominantly Inherited Alzheimer’s Disease: A View From Within
Audio: Featuring Dr. Randall Bateman, Dr. Roy Yaari and family member Daisy Duarte
Lilly, July 2020
Early Alzheimer’s families hold key to beating dementia
The Times of London, July 15, 2017
Early Alzheimer’s Gene Is A Curse For Families, A Gift For Science
NPR, December 2016
Family member presentation to World Dementia Council meeting
London, December 5, 2018 (Shared with permission of presenter and WDC)
Family Presentation: 2020 Virtual DIAD Family Conference
Family Conference 2020
Family Presentation: Brenda Monserrat
Family Conference 2019
Family Presentation: Bryan Salter and Carrie Salter-Richardson
Family Conference 2018
Family Presentation: Compassionate Use
Family Conference 2015
Family Presentation: Dan Chrysler
Family Conference 2019
Family Presentation: Jetske van der Schaar
Family Conference 2018
Family Presentation: Joanne Harrigan
Family Conference 2015
Family Presentation: Renee Perkins
Family Conference 2015
Family Presentation: Sophie Leggett
Family Conference 2017
Family Presentation: The Journey of a DIAD Child
Family Conference 2019
Family Presentation: The Silver Lining
Family Conference 2015
Family Presentation: Unraveling
Family Conference 2015
Family with history of rare Alzheimer’s gene hopes for a cure
CBS News, October 2015
Man looking for answers with new Alzheimer’s study
Global News, March 2016
Seeking Alzheimer’s clues from few who escape genetic fate
From AP News, March 2023
The Family Business: A Journey into Alzheimer’s Research
Family Conference 2017
The Hardest Test: Tucson family has hereditary Alzheimer’s
broken
Arizona Daily Star, February 20, 2016
The heartbreak and heroism of being the X-Men in Alzheimer’s disease
St. Louis Post-Dispatch, February 10, 2019
Three generations of a British family are helping the fight against Alzheimer’s
iNews, The Essential Daily Briefing, July 2017
WashU leading worldwide Alzheimer’s study
KSDK, St. Louis Local News, October 15, 2019
Woman facing Alzheimer’s head on
KSDK – St. Louis local news, November 9, 2017
‘Everything is for Alexis’: She is not yet 2. Her father fears she will have Alzheimer’s.
The Washington Post, December 8, 2018