Individuals & Families

Join the DIAN Expanded Registry

Patient/Family Registration

The DIAN Expanded Registry is your direct link to research studies and resources related to dominantly inherited Alzheimer’s disease (DIAD). The Registry helps researchers worldwide find participants for clinical trials that are essential for developing better methods of diagnosis, treatment and prevention.

Eligibility

  • Individuals and family members affected by the disease or those who suspect they are affected
  • Aged 18 or older and have at least two generations of family members who have experienced symptoms consistent with Alzheimer’s disease before the age of 60
  • You do not need to know whether you yourself carry a gene mutation that causes Alzheimer’s disease 

Benefits of enrolling

  • Learn about current research and clinical trials
  • Make themselves available as a potential clinical trial participants
  • Gain access to genetic counseling and testing as part of an ongoing research project
  • Attend international family conferences and engage in other educational opportunities
  • Receive regular updates about upcoming events and resources
  • Increase the power for successful DIAD drug trials through their participation